Lea’s story is one of resilience, transformation, and a relentless pursuit of advocacy. From her early days as a political analyst to her unexpected journey into the nonprofit sector, she has faced numerous challenges, including a life-changing diagnosis of Stiff Person Syndrome (SPS). Despite her health struggles, Lea continues to raise awareness, inspire others, and create a meaningful impact through her work.
From Political Analysis to Advocacy
Lea’s career began in political consultancy, where she had her first political analysis published in 2008 in The Middle East magazine, based in London. What started as a goal to publish one article soon turned into three published pieces within her first year. Her sharp analytical skills and deep understanding of global affairs set her on a promising path in media and political consulting.
However, life had other plans. By chance, she found herself working in the nonprofit sector, where she quickly realized the power of advocacy. Helping others became more than just a profession—it became a calling. As she worked on various causes, she discovered the impact that awareness and self-advocacy could have, especially in the medical field.
A Life-Changing Diagnosis
Lea’s life took a drastic turn when she was diagnosed with Stiff Person Syndrome (SPS), a rare and debilitating neurological disorder. The condition affects mobility, causes painful muscle spasms, and can severely impact daily life. But rather than letting the diagnosis define her, Lea took charge of her own narrative.
She launched her Instagram page, Bent_not_Broken_Autoimmune, and started sharing her journey, educating others about rare diseases, and offering support to those facing similar struggles. She also co-founded a YouTube channel, Living with Stiff Person Syndrome: Heart to Heart, where she provides valuable insights into life with SPS.
A Near-Death Experience and a Comeback
In February 2024, Lea experienced septic shock, a critical condition that nearly took her life. The recovery process was long and exhausting, but her determination never wavered. Instead of stepping away from her work, she used the experience as fuel to keep pushing forward.
Despite the physical toll, Lea returned to writing and was published twice after her illness. She proved to herself and others that setbacks do not define success—resilience does.
Raising Awareness and Making an Impact
Lea is passionate about raising awareness for SPS and other rare diseases. Her work extends beyond social media; she actively contributes to Reddo, a UK-based nonprofit organization dedicated to supporting people with autoimmune conditions. Lea deeply admires the team behind Reddo and hopes to help the organization grow even further in 2025.
By sharing her personal experiences and advocating for better understanding and support, she is changing lives. Whether through online platforms, nonprofit collaborations, or direct mentorship, her impact is undeniable.
Overcoming Challenges with Determination
Lea’s journey has not been easy. At one point, she feared she would never work again due to her deteriorating health. The uncertainty of treatments, constant medical battles, and physical limitations made her question her future.
But through time, patience, and self-belief, she proved herself wrong. She learned that taking breaks and allowing the body to heal is just as important as pushing forward. Her comeback is a testament to the power of perseverance and the human spirit.
Lessons from a Life of Advocacy
One of the most valuable lessons Lea has learned is the importance of seeking advice from those she trusts. While she does not see failures in her career, she acknowledges the difficulties she has faced and credits her support system for helping her navigate them.
She believes success is not defined by job titles or career plans but by the direct impact one has on others. For Lea, true success lies in making a difference in people’s lives, whether through advocacy, awareness, or simply offering support to those in need.
The Road Ahead
Looking forward, Lea hopes to continue inspiring others to become advocates for their own causes. While achieving a legacy would be a dream, her ultimate goal is to empower more people to raise awareness, support important missions, and drive change.
She encourages others to be kind to themselves, take constructive advice, and never give up on what truly matters. Her story is a reminder that no matter how difficult the journey, there is always a way forward.
Connect with Lea
Lea actively shares her advocacy and personal experiences through her social media platforms:
- Instagram: @bent_not_broken_autoimmune
- YouTube: Living with Stiff Person Syndrome: Heart to Heart
- LinkedIn: Lea Jabre
Lea’s journey is proof that even in the face of immense challenges, perseverance, passion, and advocacy can make a real difference. Her story continues to inspire many, proving that strength is not about being unbreakable—it’s about bending without breaking.
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